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People with dementia should be involved in their care

People with dementia should have a say in the decision-making surrounding their own care, says The National Institute for Health and Care Excellence (NICE). 

NICE has been providing public health guidance since 2005, however, the guidance regarding dementia care had not been updated in 10 years before now. The new guideline highlights the need for those with dementia to take an active role in their own care.


What do the new guidelines say about dementia care?


The NICE dementia guidelines have introduced a number of new practices to promote the independence of dementia patients, including:

  • The opportunity to discuss their care going forwards, as well as their preference of care location e.g home carelive in care or otherwise.
  • Group Cognitive Stimulation Therapy should be offered to everyone with moderate and below symptoms of dementia.


Deputy Chief Executive of NICE, Professor Gillian Ling, said that the new recommendations “…focus on person-centred support, placing a particular emphasis on involving people with dementia in every decision about the care they receive.”

She went on to say that dementia is an individual experience for everyone and can manifest differently from person to person. This means that dementia requires a more individualistic approach than was considered previously and extra effort should be made to include the person living with dementia in the decision making process.


What do the new guidelines mean for carers of people living with dementia?


As well as promoting the autonomy of those with dementia to speak for themselves, the updated guidelines also gave more advice targeting carers for those living with dementia:

  • Herbal formulas, Vitamin E supplements and acupuncture should not be used to treat people with dementia.
  • Additional face-to-face training and mentoring should be provided for dementia carers.
  • A unique care plan should be in place for every person living with dementia, which is then reviewed at least annually.

Currently, only 1/3 carers are trained to provide care for people living with dementia in the UK. With dementia diagnosis on the rise, all caregivers need to be prepared to provide professional care. NICE hopes that this guideline will spur the government to create a governing regulation.


At Burley’s Home Care, our professionally trained carers understand that dementia can be challenging for not only those living with it, but close family and friends too. Our Dementia Care is designed to help maintain your mental and physical wellbeing, preparing tailored care to suit you. For more information about our Dementia Care, get in touch.